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On May 9th, 2024, Department of Paediatrics observed World Thalassemia Day and hosted an interactive full-day event in the campus for thalassemia-affected patients on World Thalassemia Day. The event aimed to empower and uplift individuals affected by thalassemia by providing them with opportunities for personal growth, creativity, and community sport. Thalassemia is a genetic blood disorder, and it requires lifelong medical care and often results in physical and emotional challenges for patients and their families.

The institution invited dignitaries namely Dr. J. S. Bhawalkar,{Dean,} Dr. Mrs. P. Vatsalaswamy {Director Academics}, Dr. H. H. Chavan {Medical Superintendent}, Dr. Mahesh Sulaxane, {IAP Secretary} , Dr. Shailaja Mane {HOD & Professor}, Dr. Dnyaneshwar P Upase, Senior Consultant Haematologist and Hemato Oncologist thalassemia patients along with families, other healthcare professionals and members of the community to join in this insightful event and contribute to the well-being of individuals fighting with thalassemia.

Dr. Mahesh Sulaxane, IAP (full form) Secretary was the chief guest at the event. While addressing the event, he said, “It's impressive to see the special efforts undertaken by the institute towards the well-being of their thalassemia patients. Dr. D. Y. Patil Medical College, Hospital & Research Centre has been consistently launching initiatives to create awareness about thalassemia as well as other serious conditions and has succeeded in raising the bar for healthcare across its contemporaries.”

Hon’ble Dr. Yashraj Patil, Trustee and Treasurer of Dr. D. Y. Patil Vidyapeeth (Deemed to be University), Pimpri, Pune, said, “We must stand united to raise awareness for those battling thalassemia and continue our efforts to empower the patients to lead fulfilling lives despite the challenges in their day to day lives. Additionally, such training initiatives foster confidence and self-esteem, enabling them to navigate the complexities of managing their condition with greater resilience and resourcefulness.”

Dr. Dnyaneshwar P Upase, Senior Consultant Haematologist and Hemato Oncologist at Dr. DY Patil Medical College, Hospital & Research Centre, Pimpri, Pune, said, “Our institute believes that every individual regardless of their economic and health condition, deserves an opportunity to reach their full potential. By coming together to celebrate this day we can create a bright future for those affected by this condition and give them a chance to truly thrive in this dynamic environment.” Dr. Upase elaborated on a comprehensive array of treatment options such as bone marrow transplant for potential cure, emerging non-transfusion therapies like luspatercept injections and the use of blood transfusions alongside iron chelation therapy. Regular check-ups were emphasized to ensure the overall well-being of patients with thalassemia.

During the session, Dr. J.S. Bhawalkar, Dean, Dr. D.Y. Patil Medical College, Hospital & Research Centre, Pimpri, Pune, stated, “Our institution is committed to providing holistic care to the thalassemia patients that goes beyond medical treatment. We are aware that this disorder requires not just physical but also emotional support and through this event, we aim to foster a sense of accomplishment and self-worth by enhancing their quality of life.”

The event offered multiple soft skills workshops and training sessions catering to the interests and abilities of thalassemia patients. From vocational skills to educational opportunities, the patients were able to get hands-on experience that would ensure that they are equipped with skills that would help them in different walks of life. In addition to this, the institution had planned several art activities to encourage self-expression and creativity of the patients to discover their artistic talents through painting, drawing, music, essay writing, etc., which were designed for personal growth and development of the patients.

Through this event, Dr. DY Patil Medical College, Hospital & Research Centre, Pimpri, Pune once again reiterated its commitment to community well-being through arranging such initiatives, contributing to the broader effort to raise awareness about thalassemia and its impact on the affected individuals and their families.

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Patil Medical College hosted a comprehensive World Thalassemia Day event featuring expert speakers, empowering workshops, creative activities, and a focus on holistic patient care.","content","# World Thalassemia Day: Empowering Patients Through Holistic Care\n\n**Overview**\n\nOn May 9th, 2024, the Department of Pediatrics at Dr. D. Y. Patil Medical College, Hospital and Research Centre, Pimpri, Pune, hosted a comprehensive and impactful event in observance of World Thalassemia Day. This event went beyond raising awareness, offering thalassemia patients opportunities for personal growth, creative expression, and community engagement. It underscored the institution's commitment to providing holistic care that addresses the diverse challenges faced by thalassemia patients and their families.\n\n**Highlights**\n\n* **Distinguished Guests:** Esteemed dignitaries graced the event, including Dr. J. S. Bhawalkar (Dean), Dr. Mrs. P. Vatsalaswamy (Director of Academics), Dr. H. H. Chavan (Medical Superintendent), Dr. Mahesh Sulaxane (Secretary, Indian Academy of Pediatrics - IAP), and Dr. Dnyaneshwar P Upase (Senior Consultant Haematologist and Hemato-Oncologist).\n* **Empowering Workshops:** Patients participated in soft skills workshops and training sessions, equipping them with valuable life skills to foster personal and professional development.\n* **Creative Expression:** Art activities such as painting, drawing, music, and essay writing encouraged self-expression, nurtured artistic talents, and promoted emotional well-being.\n* **Comprehensive Treatment Overview:** Dr. Upase discussed a spectrum of treatment options, from bone marrow transplants to emerging non-transfusion therapies like luspatercept injections, and emphasized regular check-ups for comprehensive patient management.\n* **Holistic Care Focus:** The event showcased the institution's dedication to providing comprehensive support that extends beyond medical treatment, addressing the emotional and social needs of thalassemia patients.\n\n**Quotes**\n\n* **Dr. Mahesh Sulaxane (Secretary, IAP):** \"It's impressive to see the special efforts undertaken by the institute towards the well-being of their thalassemia patients... Dr. D. Y. Patil Medical College, Hospital & Research Centre has consistently launched initiatives to raise awareness about thalassemia... and has raised the bar for healthcare among its contemporaries.\"\n* **Dr. Yashraj Patil (Trustee and Treasurer, Dr. D. Y. Patil Vidyapeeth):** \"We must stand united to raise awareness for those battling thalassemia and continue our efforts to empower patients to lead fulfilling lives...\"\n* **Dr. Dnyaneshwar P Upase (Senior Consultant Haematologist and Hemato-Oncologist):** \"Our institute believes that every individual... deserves an opportunity to reach their full potential... By coming together to celebrate this day, we can create a bright future for those affected by this condition...\"\n* **Dr. J.S. Bhawalkar (Dean):** \"Our institution is committed to providing holistic care to thalassemia patients that goes beyond medical treatment... We aim to foster a sense of accomplishment and self-worth by enhancing their quality of life.\"","sdg",[88,89],"2025-02-23T14:19:55.517698+05:30","2025-02-23T22:53:59.409922+05:30",{"_52":108,"_91":109,"_93":110,"_95":111,"_22":110,"_97":112,"_99":113},{"_52":90,"_91":92,"_93":94,"_95":96,"_22":94,"_97":98,"_99":100},"https://cdn.openscholar.in/media/public/sdg/assets/E-WEB-Goal-10.png","targets",[101],"sdg_name","Reduced Inequalities","sdg_number",10,"long_description","Reduce inequality within and among countries.","sdg_justification","The event promotes inclusivity by providing tailored support and empowerment opportunities to individuals with thalassemia, reducing health disparities.",{"_102":103,"_104":105,"_106":107},"justification","The event specifically targets thalassemia patients, a group often facing health inequalities, and empowers them through skill-building workshops and social support.","target_number","10.2","target_description","By 2030, empower and promote the social, economic and political inclusion of all, irrespective of age, sex, disability, race, ethnicity, origin, religion or economic or other status","https://cdn.openscholar.in/media/public/sdg/assets/E-WEB-Goal-03.png",[114,115],"Good Health and Well-being",3,"Ensure healthy lives and promote well-being for all at all ages.","This event directly addresses health and well-being by focusing on thalassemia, a genetic blood disorder. 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